Family members and carers of people affected by addiction say that they can feel overwhelmed by everything that’s happening around them. The chaos of addiction not only affects the individual but those close to them. It can feel like being on a rollercoaster; there can be worry, stress and difficult decisions.

Connecting Carers can provide information and support. Getting support for yourself is a step along the way to feeling less isolated, having more balance in your life and thinking about the role you want to play

Why are all family members important?
Problematic drug/alcohol use affects many people not only the person with the addiction. Family members and close friends can experience stress and health problems. The impact can also spread more widely affecting work or study, social life, relationships, and finances.
Family members often provide support to their using relative and this has been shown to be important in three distinct but related ways:

• Preventing and/or influencing the course of the substance misuse problem
• Improving substance-related outcomes for their drug-using relative, i.e. reduced substance misuse,
  as well as promoting better engagement with treatment
• Helping to reduce the negative effects of substance misuse problems on other family members.
  Family members may need help to meet their own pressing needs but also to assist them to provide
  effective support to their using relative and to other family members.

Family members who are affected by a relative’s substance misuse often don't seek help for themselves, partly due to concerns about stigma or because their focus and that of treatment services has been on helping the person with the addiction.

What are your rights as a family member, partner or friend?
It is important the views of family and friends are considered and valued. Family members often have a detailed, day to day knowledge of the person with the addiction and they can be affected by decisions about treatment for that person. As a result NHS Highland Carer Information Strategy and Highland Alcohol and Drug Partnership Strategy states that carers should be recognised as a key partner in the provision of care and are also entitled to general information about the condition and medication, even if the person who is being cared for does not consent to specific personal information being shared.
 
Connecting Carers can offer you a Carer Support Plan to explore and plan support for yourself as a carer of someone with an addiction issue.

Further Information

Al-Anon Family Group Meetings - friends and family members of problem drinkers share their experiences and learn how to apply the principles of the Al‑Anon program to their individual situations.

Addictions Counselling Inverness -offers help and support to individuals who may be experiencing problems due to their own or someone else's alcohol or drug use. www.addictionscounsellinginverness.org

Know the Score - this website contains information for anyone who wants to know about drugs in Scotland and the harmful effects of drugs misuse - www.knowthescore.info

Online Directory of Specialist Drug Services in Scotland - this online directory has been developed to help people find information on all drug treatment and rehabilitation services in Scotland - www.scottishdrugservices.com

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk

You, the carer, decide what you want to say; advocacy supports you to do it.

We recognise that the caring role can be frustrating, lonely and exhausting so we listen carefully to what a carer has to say about their circumstances, helping to identify and prioritise issues and building carers’ confidence to better deal with the challenges they face.

How do we provide support?
Carers tell us that sometimes they don’t feel they are listened to and that they can feel intimidated or ignored in meetings.  Advocacy can help and depending on a carers needs this could be to: -
 
· Help a carer prepare for a meeting by identifying and prioritising issues and being clear about the views they wish to express. Advocates can speak on the carers behalf if preferred.
· Contact professionals or services by telephone/letter/phone/email on behalf of a carer.
· Attend meetings with or on behalf of a carer.
· Signpost carers to sources of information which can help carers to make informed choices.
 
Advocacy support does not guarantee a successful outcome but it does give a carer an assurance that they have been listened to.
 
What happens next?
An advocate will contact you to explain the service and discuss your situation.  This gives you an opportunity to identify your most important issues and begin to think about the kind of advocacy support you feel you might need. 
 
The advocate will explain that they will: -
 
· Be independent of service providers and free from conflicts of interest.
· Provide assistance to enable the carer to try and resolve their issue(s).
· Help carers identify sources of information.
· Discuss concerns with the carer and jointly agree which goals to work towards. 
· The advocate will agree with the carer what actions they will undertake (such as writing letters, attending meetings, making telephone calls) and what actions the carer will undertake.
· Keep in regular contact with the carer
· Never give advice or tell the carer what to do
· Never, in normal circumstances, disclose any information the carer gives them to anyone else without the carer’s express permission. 
 
If the advocate believes there is a serious risk to the safety of the carer or another person, or that a crime may be/has been committed, the advocate must consider breaking confidentiality.  The advocate will try to talk to the carer before doing this.  Very rarely a situation may arise which is so serious that the advocate must take immediate action and it is not possible to speak to the carer before breaching confidentiality.  If this happens, every attempt will be made to speak to the carer afterwards to explain why the decision to breach confidentiality was taken place.
 
What we cannot do
The advocate cannot: -
 
· Guarantee a successful outcome. The advocate will support the carer to have their views heard but cannot ensure that a particular outcome is achieved.
· Accept responsibility if the carer makes commitments on the advocate’s behalf which have not been discussed with the advocate beforehand.
· Take legal action but may, where appropriate, assist the carer to access legal representation.
 
If you decide to proceed with advocacy you will be asked to provide detailed, accurate and up-to-date information about the issue you wish to pursue.  You will also be asked to sign a form giving your consent for Highland Carers Advocacy Service to work with other agencies on your behalf and giving your permission for the service to maintain a record of the work it does with you.
 
If things go wrong
Our aim is to provide the best possible advocacy service for carers.
However in some circumstances a carer may not be satisfied with certain aspects of the service they have received.  In the first instance contact should be made with the Carers Advocacy Manager on 01463 723569 who will make every effort to achieve a satisfactory resolution. In circumstances where a resolution is not agreed, details of the Formal complaints Procedure will be made available.
 
If you wish to access the advocacy service, please call 01463 723569 or email advocacy@connectingcarers.org.uk
 

 

 
 
 

 
 

The death of someone close to you can be emotionally devastating. You might find you experience a range of physical and emotional symptoms as you come to terms with your loss. The links below are to useful information from MIND UK on specific conditions and symptoms that some people experience when they are going through a bereavement.

• Panic attacks
• Anger
• Suicidal feelings
• Anxiety
• Loneliness
• Sleep problems
• Depression
• Stress

This information was published in November 2016.   You can find more information on bereavement support at the Cruse Scotland web site: http://www.crusescotland.org.uk/

Nursing Care Services
If you live in a care home and are assessed as needing nursing care services your local authority will pay £78 per week (with effect from April 1, 2015)  directly to your care provider on your behalf.

Attendance Allowance
If you receive free personal care at home you are eligible for attendance allowance. However if you are in a care home and chose to receive free personal care payments you will no longer be eligible for attendance allowance after 28 days.

If you are 65 or over, live at home and need help to pay for your care, you must ask the Highland Health and Social Care Partnership to assess your needs and agree a care package to meet those needs. You will not have to pay for any Personal Care you receive.
There are a number of third sector organisations who can also provide certain aspects of care. Ask your Carer Liaison Worker for more information on what is available in your area.

Private Care Provision
You can also pay for the provision of care through an independent care provider. These are independent businesses who specialise in providing care. These providers charge for the provision of care and in some cases this can be the solution that best fits.
Where a person is in receipt of an SDS budget, they can purchase their own care through an independent provider of their own choosing.
There are a number of Independent Qualified Carers who run small scale operations in local areas.

Useful resources

Care services in Scotland are not allowed to operate unless they are registered with the Care Inspectorate. As well as registering care services the Care Inspectorate inspect and grade them to ensure they follow the National Care Standards. They also deal with complaints and can take action to force services to improve. Call 0845 600 9527 or visit: www.scswis.com.
Highland Council’s Service Centre who will direct your query to the appropriate department. Telephone: 01349 886606
Charging for Residential Accommodation Guidance - visit: www. scotland.gov.uk/Topics/ Health/Support-SocialCare/Financial-Help/ Charging-Residential-Care.

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk

A person's behaviour can be defined as "challenging" if it puts them or those around them such as their carer at risk, or leads to a poorer quality of life. It can also impact on their ability to join in everyday activities. Challenging behaviour can include aggression, self-harm, destructiveness and disruptiveness. If communication is a problem, it can be very frustrating for the person and may result in challenging behaviour. Challenging behaviour is often seen in people with conditions that affect communication and the brain, such as learning disability or dementia.

What can you do to help?

As a carer, try to understand why the person you look after is behaving in this way. For example, they might feel anxious or bored, or in pain. If you can recognise the early warning signs, you may be able to prevent behavioural outbursts. Some people find a distraction can prevent them displaying challenging behaviour. The person you care for might behave in a challenging way to get your attention. If this is the case, consider not responding directly to their behaviour – although you shouldn't ignore them completely. But if their behaviour puts them or someone else at risk, you'll need to intervene as calmly as possible.

Professional help with challenging behaviour

If you're finding it hard to cope with the behaviour of the person you look after, you can ask your GP to refer you to a specialist with knowledge of challenging behaviour. You will usually be asked to keep a record of the person's behaviour to see if there are any patterns.
The specialist will want to know what situations or people trigger the behaviour, what the early warning signs are, and what happens after the event. If a reason for the behaviour can be established, their needs could be met in an alternative way to prevent them resorting to challenging behaviour.
In extreme circumstances – for example, if the person's behaviour is harmful to themselves or others and all methods of calming them have been tried – a doctor may prescribe medication.

Challenging behaviour – help for carers

If you care for someone who displays challenging behaviour and you find it difficult to cope, support is available. It is particularly important that you seek support if you are experiencing harm from the person you care for (whether intentional or unintentional).
Sharing your experiences – for example, with a local carers' group – can be a good way of getting support. Contact the Connecting Carers support line on 01463 723560 to find out about support and local carer groups.
Respite care for the person you look after enables you to take a break from your caring responsibilities. See our leaflet on Carer Centre Services for more information. Friends and family members can also be an important source of practical and emotional support.

Managing challenging behaviour

• Make sure the individual feels valued and listened to.
• ·   Make sure that where communication disorders exist, the individual has a method of communicating effectively.
• ·       Give the individual other ways of communicating a need.
• ·       Reduce, where necessary, expectations of the individual.
• ·       Determine triggers, such as noise or attitudes that might provoke or maintain challenging behaviour.
• ·       Anticipate potential problems and intervene where appropriate (for example, by providing additional support, redirection to another activity or reducing noise level).

There are few golden rules in supporting people who display challenging behaviour. One is that happy people tend not to challenge. Find out what makes the person happy and make it happen more in their life, then you may find that the behaviour starts to disappear.

It is reasonable to expect that with assessment, communication techniques, carer support and consistency, encouragement and teaching of new coping skills, behaviour can be managed effectively. It's important to set realistic goals for the individual and aim to increase the person’s quality of life and minimise the impact of the behaviours displayed.

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk
 

 

Conditions such as dementia, severe mental illness and learning disabilities can limit our capacity to understand or communicate the information we need to make decisions. Family members or friends can legally help the person they care for with decision-making on issues such as welfare, healthcare and finance.
 
More information can be found in our booklet on Power of Attorney, Guardianship and Emergency Planning.
 
The Law Society of Scotland can help in finding a solicitor. They can also advise on how fees are set, solicitors’ standards and how to make a complaint. Call 0131 226 7411 or visit: www.lawscot.org.uk
 
If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk
 

Many people suffer from an eating disorder and caring for them can be challenging.

The Highland Eating Disorder service invites you to a series of skills training sessions. The group will offer training facilitated by one of our team and an opportunity to meet with others with a friend or family member with an eating disorder.

When...... 2^nd Monday of the month
Where...... Greenfields House, New Craigs Hospital, Leachkin Road, Inverness IV3 8NP
What time....... 5.00 - 6.30pm

Topics 
Monday 12^th Nov 2018 – ‘Caring styles and  Communication skills’
Monday 10^th Dec 2018 – ‘Coping with Christmas’

If you have any questions or need directions, please contact the Highland Eating Disorder service on 01463 253667


In Scotland there is an  online peer support service available for young people (aged 14-25), and parents/carers of young people with an eating disorder across Scotland.
Beat, the UK’s eating disorder charity, has teamed up with the NHS in Scotland to deliver both online peer support and a new online resource for parents/carers, thanks to funding from the Technology Enabled Care Grant from the Scottish Government. 

 One-to-One Email Support

Want to talk to someone who understands your experiences?  Beat will pair you up with Beat-trained volunteer befriender who has recovered from their own eating disorder or supported someone through recovery.

What to expect from a Beat befriender:

• 1—3 emails per week.

• A listening ear.

• Encouragement.

• Signposting to other services that might be helpful during your journey.

Introducing the befrienders:

• Trained by Beat, the UK’s eating disorder charity.

• Individuals aged 18—35 who have recovered from an eating disorder.

• Parents or carers who have supported a young person aged 12—25 with an eating disorder.

Am I eligible?

• I provide support to a young person in Scotland with an eating disorder who is aged between 12—25 years old OR

• I am a young person with an eating disorder in Scotland and I am 14—25 years old.

How to access the support:

Email teced@beateatingdisorders.org.uk to register for the service.

 Online Resource for Parents/Carers

CARED is aimed at parents and carers whose loved ones have recently began treatment for an eating disorders. It is hoped that this resource can improve confidence and reduce isolation.

What to expect from your CARED:

• Skills-based video tutorials

• Links to appropriate resources

• Tutorials compatible with evidence-based treatment

• Hints and tips from recovered young people, professionals and other parents and carers

How to access the support:

Visit www.caredscotland.co.uk

 

As a carer you need to know that if an emergency happens replacement care will get sorted out quickly and efficiently.

When emergencies happen our lives are put on hold whilst we deal with them. For many carers life cannot simply be put on hold when the person they are looking after relies on them for vital help and support. When it is a carer who is rushed into hospital, who else will step in.

Creating an Emergency pPan

Connecting Carers advise all carers to create an emergency plan for you and the person you look after. Having a plan in place can help ease your worries if you are not able to care for the person you at any point in the future.

In order to create an emergency plan that fits your needs, you need to consider:

• -     Contact details of the person you look after.
• -       Who you and the person you look after would like to be contacted in an emergency,  this might include friends, family or professionals.
• -       Details of any medication the person you look after is taking.
• -       The names of two emergency contacts who know the caring situation and who also know your emergency plans.
• -       Details of any ongoing treatment they need.

      Involving others in the plan
      You may be able to arrange help and support from family and friends but it can be reassuring to have the involvement of your local care centre and NHS Highland in case informal arrangements fall through.   One way to do this is through an assessment for the person you look after or an Adult Carer's Support Plan for yourself.

Every carer who has an Adult Carer Support Plan should be asked about emergency planing during the discussion and offered help to prepare a plan.  In addition, carers who provide care for people with mental health problems under the care programme approach should have a written care plan which includes contingency planning.

Our Carer Liaison Workers can assist you in emergency planning and can ensure that, if necessary and with your permission, a copy is sent to your social work office for them to record and act upon in the event of an emergency.

Remember it is important to involve at least two other people that you trust and can rely upon. The details of these people must be in the plan and they should know that they are named in the plan so they can act in the event of an emergency.

Emergency Plan & Card
There are a number of things you can do to create an emergency plan and you can download an Emergency Plan document here and apply for an emergency card here.   Connecting Carers have produced a Carer Emergency Card which carers carry with them at all times.  

Connecting Carers also has leaflets on Power of Attorney and Money Matters, which you may also find useful.

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk

 

Becoming a carer affects us all in different ways. Whether we felt we had a choice about it or began caring because of circumstances, there is no doubt that caring can be difficult at times. Usually there is not any prior training so most people muddle through as best they can, learning as they go along. You may love the person you care for but the daily responsibility of attending to their needs can mean that your own needs are often neglected.

Changing relationships

Carers often say that one of the most difficult things to deal with is accepting that their relationship with the person they care for has changed.  Perhaps your partner can no longer take on the responsibility of managing the household finances and you have had to take over. Or your child's recently diagnosed disability has meant that you are not only their parent but their nurse and advocate as well.

Ways of coping

Taking time out for yourself

Leisure time is often the first thing that disappears for carers and yet it is one of the best stress relievers. If possible try to take some time out each day. Having a Carer Support Plan can help identify your needs as a carer. It will include looking after yourself and finding ways to ensure you can have a life outside of caring. It can be simple things like a couple of hours having a coffee and a catch up with an old friend or planning for an actual respite break away from the caring role to recharge your batteries. See our Small Grants leaflet for tips.

Exercise

Getting some regular exercise helps our bodies get rid of excess stress energy, otherwise we may find that we are pacing about and tapping our hands and feet. Try swimming, a fitness class or even a short walk. It's important to do something you actually enjoy or it will become yet another chore.

Taking part in groups

Joining a local carers support group can be a way of getting both practical and emotional support. Other carers are often a great source of knowledge and expertise. No matter what you are struggling with there will usually be someone who has been through something similar and can understand how you feel.

Sleep

Most of us need around 7-8 hours sleep a night, less as we get older. If your sleep is often disturbed think about having a 5 to 20 minute catnap during the day to recharge your batteries.

Think about your diet

If we are giving our bodies plenty of fuel in the form of healthy food and drink and monitoring our caffeine and alcohol intake then generally we find that our ‘engine’ will run better. The healthier we are, the more easily we can cope with the demands of caring.

Remember to breathe

A simple technique to use when things are getting on top of you is to focus on your breath. Take three slow, deep breaths in through your nose and out through your mouth. Practice this next time you are in a queue or have a few moments to spare and notice the calming effect it has.

Moving On

Moving forward first involves letting something go, the old life that you had before you became a carer and maybe some of your hopes and dreams for the future.   Sometimes we feel hopeless and stuck, not believing that anything will ever change for the better. We need to acknowledge what we have lost and accept that before we can think to the future and begin to allow ourselves to create new plans.

Counselling

Connecting Carers has its own volunteer counselling service. We have dedicated volunteer COSCA accredited Counsellors who offer counselling to carers free of charge.

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk

Background information on flexible working
You have the right to request flexible working if you are an employee with 26 weeks continuous employment with your employer at the date you make the application and you are: a parent with a child under six or a disabled child under 18 or a carer.

Additional you qualify as a carer if you are, or expect to be, caring for a spouse, partner (who you live with), civil partner or relative, or live at the same address as the adult in need of care.

How to request flexible working
You have the right to make one application per year and you are not required to prove the caring relationship but it may help your application to provide as much information as possible. Caring in this context can include help with personal care, emotional support, helping with financial matters or paperwork and support to attend medical appointments. The request for flexible working should be made in writing (your employer may have a standard form) and include the date of application, confirmation that you are eligible and an outline of the working pattern you would like.

Flexible working patterns could include:
• flexible starting and finishing hours
• compressed working hours
• annualised working hours (e.g. hours are calculated over a year and you work some fixed shifts but have flexibility over some of your hours)
• term-time working
• job sharing and part time working
• homeworking and teleworking

The right to time off in emergencies
Also known as time off for dependants, this gives all employees the right to take a ‘reasonable’ amount of time off work to deal with an emergency involving a dependant. Whether the time off is paid or not is at the discretion of the employer.
A dependant could be mother, father, son, daughter, parent or anyone who lives with you who is solely dependent on you.
An emergency could be:
• a disruption or breakdown in care arrangements
• the death of a dependant
• if a dependant falls ill or has been assaulted
• to make longer term arrangements for a dependant who is ill or injured (but not to provide long term care yourself).

Carers Rights in Employment
To use this right to time off employees must inform their employer as soon as possible after the emergency has happened.

Parental leave
If you have one year of service you are entitled to 13 weeks parental leave to care for a child and 18 weeks for a disabled child who receives Disability Living Allowance and is under 18.
Leave can be taken in blocks of one week up to a maximum of four weeks leave in a year (for each child). It can be taken in single or multiple days if the leave is to care for a disabled child.

Equalities Act
This legislation protects carers from direct discrimination or harassment because of their caring responsibilities. See ‘Your rights as a carer’ factsheet for more details.

Seeking support in the workplace
Employers value skilled, experienced and committed members of staff and are keen to keep them. Your employer may be able to help in ways you have not considered.

Talk to them about your situation directly, or through your HR/personnel officer or union or staff association representative.

Before you decide to speak to your employer you should find out more about your employer’s policy for supporting carers.

If you decide to leave work make sure you check all your options before you resign, for example can you take a career break, voluntary redundancy or early retirement?

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk
 

It is important that all parts of the patient’s support system (the carer, the hospital, primary and community care services) work together to achieve the best outcome for both the cared for person and the carer.

It is important that carers:

• Are identified as early as possible
• Are made aware of their rights to assessment and support
• Have access to services which can help

If the person that you look after is being discharged from hospital, you should not be put under pressure to accept a caring role or take on more than you feel you can do.

There are many ways in which Connecting Carers can help you:

• Through advocacy support to help put your views across
• By carrying out an Adult Carers' Support Plan with you
• With information and advice, helping you or the person you care for to access services
• By providing ongoing support

If you would like more information, or support when your cared for is in hospital please call Connectig Carers on 01463 723560 or email carers@connectingcarers.org.uk.

If you have discovered that your housing is no longer suitable there are a variety of options to explore. Highland Council can help in a number of ways, including sourcing suitable accommodation.

What is sheltered housing?
Sheltered housing usually describes easy to manage groups of properties, which are usually set aside for use by older people (or other people who may need it - for example, people with a physical/mobility disability). Sheltered housing is provided by the council and housing associations and generally includes:

• A sheltered housing warden service provided for the scheme.

• A telecare system (otherwise known as a community alarm or help call) in every sheltered property.

What is amenity housing?
Amenity housing is often very similar in design to sheltered housing however no warden/ housing support service is provided although properties may have a telecare system.

Highland Telecare Service
The Highland Telecare Service offers support to people in their own homes whether council housing, housing association or private housing. If you are assessed as needing this service, you will be provided with a telecare system which is an alarm for use in emergencies, e.g. if you fall or otherwise need emergency assistance.

In addition to the basic alarm there is also a range of equipment (telecare sensors) which are available with the telecare system. Examples of these include smoke detectors, gas detectors, fall detectors, property exit detectors, etc.

Housing Adaptations
Highland Council run a Scheme of Assistance Program which helps owners and private sector tenants with issues of property maintenance and disrepair and with disabled adaptations to aid independent living.

The Scheme of Assistance can help people living in private owned housing who need help adapting their home to suit the needs of someone with mobility problems or a disability. If you rent your home from the council or a housing association you should ask your landlord about the help they offer.

What is an adaptation?
“Adaptation” is a word that covers a range of changes that can help with the day to day living of someone who has been adversely affected by age, impairment, ill health, or traumatic injury. Highland Health and Social Care Partnership or NHS Occupational Therapy Practitioners make assessments for equipment, small or major adaptations depending upon need. Each assessment is given a priority rating - for example urgent works which are preventing hospital discharge will be given greater priority.

Help with small adaptations
Initially the HHSCP will assess your needs and, if appropriate, the Handyperson Service will then deliver the equipment of install the recommended adaptation. The Handyperson Service is also responsible for the installation of any recommended pieces of telecare equipment.

Help with major adaptations
HHSCP can offer more significant works to improve safety and access inside and outside buildings such as stair lifts and works to improve personal care/health needs such as level access showers.

Your needs will be assessed by an Occupational Therapy Practitioner and their recommendations will form the basis of the package of works offered to you. HHSCP can offer financial assistance with eligible works.

Once assessed HHSCP can usually offer a minimum of 80% of the approved cost of the recommended eligible works. HHSCP will assess the financial circumstances of the applicant and their spouse to find the remainder. Applicants in receipt of Income Support and the Guarantee Element of Pension Credit are automatically covered for all of the costs although HHSCP would not normally fund works in excess of a total cost of £20,000.

Repairs and Improvements
HHSCP can help people living in privately owned housing who need help with maintaining and repairing their home. If you rent privately you should talk to your landlord, council or housing association about the help they offer.

My house needs minor repairs
The Highland Council Technical Officers can offer advice on property maintenance.  The Handyperson Service is available for people aged 65 and over who have difficulties carrying out small jobs around the house and for people of any age with a disability.

My house needs major repairs
Where disrepair is more severe the Technical Officer can assess the property’s condition and grade it according to the scale and severity of problems found. They then help identify and prioritise works. If the result is that the works required are major, the Officer may assess you for financial assistance towards the work.

Financial assistance with repairs is discretionary and the level of award made will be dependent upon the outcome of a resources test which assesses the financial circumstance of the applicant and spouse.

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk

If you are struggling financially you may be entitled to support to help you in your caring role.  It is a fact that one in four carers suffers from financial worries, causing stress and anxiety.  Connecting Carers are not experts on Income Maximisation and how to get the benefits you are entitles to... but we work in partnership with lots of people that are.

Highland Council have a dedicated team offering advice on benefits and welfare support. You can find out more here.      They have produced an essential guide to benefits, money advice, energy advice and other support.  The guide is available here.

If you are unsure of what benefits you might be eleigible to please use this handy calculator from Turn2Us that can help you to work this out.  Benefits calculator

Alternatively you can use this Benefits Calculator from 'entitled to', in partnership with the Scottish government.

You can contact your local Citizen's Advice Bureau and find the one closest to you by visiting their web site: https://www.cas.org.uk/   Citizen's Advice are a great resourse and a one stop shop wher eyou can speak to knowledgable people about your situation and how to apply for benefits.

You can access information on all the benefits and supports available in the UK here.

 

Links to Other Useful Organisations

http://www.lgowit.org/

LGOWIT promotes and supports the vision of the self management of health for those living with long-term conditions.  Providing support through Peer Support Groups (PSGs) and events throughout the Highlands and Argyll and Bute. Bringing people together to help support each other.

https://www.motability.co.uk/

The Motability Scheme provides an affordable, worry-free way for people with disabilities to lease a car, scooter or powered wheelchair in exchange for their mobility allowance (DLA higher rate or PIP enhanced rate).

 

https://www.disabledgo.com/about-us

Detailed access information to thousands of venues across the UK and the Republic of Ireland: shops, pubs, restaurants, cinemas, theatres, railway stations, hotels, universities, hospitals and more. 

 

https://www.radarkey.org/

Key for disabled toilets

 

http://www.loo.org/index.php

Accessible toilets/changing places

 

https://www.motability.co.uk/news-views-and-events/rough-guide-to-accessible-britain/

Rough Guide to Accessible Britain

Packed with over 200 inspiring days out, the Rough Guide to Accessible Britain is an invaluable travel guide for anyone who has to consider accessibility when looking for a great day out.

 

https://www.ceacard.co.uk/index.php

The Card enables a disabled cinema guest to receive a complimentary ticket for someone to go with them when they visit a participating cinema.

 

https://www.highland.gov.uk/directory_record/11177/plus_one_scheme

The Plus One Scheme allows a person with high support needs to apply for a card which will give them greater access to a range of events and education, culture and sports venues.

Eligible individuals are issued with a Plus One Card. which allows an accompanying carer to gain access free, for any participating event or venue.

 

https://www.highlifehighland.com/join-high-life/

High Life membership offers you and your family access to a range of health and fitness opportunities in leisure centres throughout the Highlands. Pay just 50p per activity if your household is on: Income Support, Pension Guarantee Credit, Job Seekers Allowance or Employment Support Allowance, or individuals on War Disability Pension, Disability Living Allowance, Personal Independence Payment (from 10 June 2013), Attendance Allowance or Carer’s Allowance.

 

http://www.holidaysforall.org/

A group of the UK ’s leading specialist companies offering accessible holidays in the UK and abroad.  Whether it is a short break, respite break or a holiday for disabled people, Holidays for All can help.

 

If you’re planning a flight

https://www.caa.co.uk/Passengers/PRM/Passengers-with-disabilities-and-reduced-mobility/Passengers with disabilities and reduced mobility; Information about your rights and how to access special assistance

 

http://www.birdingforall.com/ 

organisation seeking to improve access for people with disabilities to reserves, facilities and services for birding – membership is FREE and open to all regardless of physical ability.

 

Thinking about long term care for the person you care for can be both bewildering and confusing. It can also be a very lonely task, difficult to share with others. This leaflet looks at some of the practical and emotional aspects of planning for long term care.

Choosing a care home
There are a number of directories that you can access online to search for care homes in Highland and other areas. The Care Inspectorate is a good starting point where you can also view the most up to date inspection report for the care home you are interested in.
Visit www.scswis.com or call 0845 600 9527.

You can arrange a visit to a care home or ask for someone from the home to visit you. Write down the things you and the person you care for want to ask and bring the list with you on visits. A care home should be homely, safe, secure and enable people to carry on leading as full a life as possible. Don’t be embarrassed to ask lots of questions and have a good look around.
Here is a list of some things you may wish to think about:

• Location: Is it close to local amenities and your home?

• Ambience: What is your first impression?

• Staff: Are there enough staff? How do they behave?

• Accommodation: Do you get your own room? Toilet facilities?

• Facilities: Are there visiting hairdressers, chiropodists, etc.?

• Freedom: Are safeguards in place for vulnerable adults?

• Meals: Is a choice of good quality, nutritious meals?

• Pets: Are pets allowed in the care home?

• Activities: What activities are provided by the care home?

• Keeping in contact: Access to telephone or internet?

• Having a say: How does the home handle problems?

Paying for care
If someone is assessed as needing to live in a care home then their finances have to be assessed,  taking into account the capital and income of the person moving into the care home. Capital includes property, investments and savings in that person’s name. Half of any capital in joint names will be taken into account. The value of property is not treated as capital if the person’s spouse or partner, relative over 60 or a relative under 60 with incapacity continues to live there.
If a carer (who is not a spouse or partner) has been living in the house this may mean the value is disregarded. There are upper and lower limits which define how much someone needs to pay.
 
These figures change in line with inflation and are included in the revised versions of Charging for Residential Accommodation Guidance. If someone has over the upper limit they will be asked to pay the full cost of care. Care home residents can get 50% of their private pension paid to a spouse who continues to live at home. If the person you care for is assessed as needing personal and/or nursing care, they will get the costs for both deducted from the care home fees. The amount is less for people under 65. Charging procedures can be complicated so it is worth seeking advice.

Emotional support
Thinking about long term care in a care home be an emotional time for people and as a carer you may need to deal with a number of different feelings. Our Carer Liaison Workers can help.

Long term care planning
Many carers are concerned about paying for care home fees, how much they will have to pay and what happens to property. You can discuss this with your local Carer Liaison Worker who can put you in touch with services to help.

Care Inspectorate
Care services in Scotland are not allowed to operate unless they are registered with the Care Inspectorate. As well as registering care services the Care Inspectorate inspect and grade them to ensure they follow the National Care Standards. They also deal with complaints and can take action to force services to improve. Call 0845 600 9527 or visit: www.scswis.com.

Useful resources
Charging for Residential Accommodation Guidance - visit: http://www.gov.scot/Topics/Health/Support-Social-Care/Financial-Help/Charging-Residential-Care
For up to date information about Care Home Providers and Social Care Support Providers in Highland—visit: http://www.highland.gov.uk/download/downloads/id/15003/list_of_providers.pdf
To see Independent Sector Respite Providers—visit: http://www.highland.gov.uk/download/downloads/id/11606/independent_sector_respite_providers.pdf

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk

Connecting Carers understands how stressful it can be providing a caring role. We know how important it is for you to look after yourself, but we also know how hard that can actually be.

What you can do to address stress:

Connect with people
A good support network of colleagues, friends and family can ease your work troubles and help you see things in a different way. If you don’t connect with people, you won’t have support to turn to when you need help. You can have a good laugh with them which is an excellent stress reliever. Talking things through with a friend will also help you find solutions to your problems.

Be active
Exercise won’t make your stress disappear but it will reduce some of the emotional intensity that you’re feeling, clearing your thoughts and helping you to deal with your problems more calmly. Exercise can help your mental wellbeing too.

Take control
There’s a solution to any problem. The act of taking control is in itself empowering, and it's a crucial part of finding a solution that satisfies you and not someone else.

Have some 'me time'
We often don’t spend enough time doing things we really enjoy. We all need to take some time for socialising, relaxation or exercise. Set aside a couple of nights a week for some quality ‘me time’ away from caring.

Challenge yourself
Setting yourself goals and challenges, whether at work or outside, such as learning a new language or sport, helps to build confidence. This can help you deal with stress.

Avoid unhealthy habits
Don't rely on alcohol, smoking or caffeine as a way of coping. Over the long term these crutches won’t solve your problems. You need to tackle the cause of your stress.

Work smarter, not harder
Working smarter means prioritising your work, concentrating on the tasks that will make a real difference.

Try to be positive
Look for the positives in life and things for which you're grateful. Try writing down three things that went well or for which you're grateful at the end of each day.

 Accept the things you can't change
Changing a difficult situation isn't always possible. Try to concentrate on the things you do have control over.

Seven Immediate Stress-Busters for Carers
Watch for the next instance in which you find yourself becoming annoyed or angry at something trivial. Then practice letting go, making a conscious choice not to become angry or upset. Do not allow yourself to waste thought and energy where it isn’t deserved.

Breathe slowly and deeply. Before reacting to the next stressful occurrence, take three deep breaths and release them slowly. If you have a few minutes, try out a relaxation technique such as meditation or guided imagery.

Whenever you feel overwhelmed by stress, practice speaking more slowly than usual. You’ll find that you think more clearly and react more reasonably to stressful situations.

Get outdoors for a brief break. Our grandparents were right about the healing power of fresh air. Don’t be deterred by foul weather. Even five minutes outside can be rejuvenating.

Drink plenty of water and eat small, nutritious snacks. Hunger and dehydration, even before you’re aware of them, can provoke aggressiveness and exacerbate feelings of anxiety and stress.

Do a quick posture check. Hold your head and shoulders upright and avoid stooping or slumping. Bad posture can lead to muscle tension, pain, and increased stress.

Plan something rewarding for the end of your stressful day, even if only a relaxing bath or half an hour with a good book. Put aside work, housekeeping or family concerns for a brief period before bedtime and allow yourself to fully relax.
 
If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk

Personal Independence Payments (PIP) are gradually replacing Disability Living Allowance (DLA). Like DLA, PIP is a non-means tested benefit for people with a long-term health condition or impairment. When you make a claim for PIP you are likely to need an assessment to help the DWP work out the level of help that you need.

Attendance Allowance (AA) is a benefit for people aged 65 and over who need help with personal care or supervision to remain safe. AA is not means tested and there are two rates. The lower rate is awarded if you need frequent help or supervision during the day or at night. The higher rate is for people who need help or supervision both day and night, or those who are terminally ill.

Carer’s Allowance is £61.30* a week, you may get it if you:
• are 16 or over
• spend at least 35 hours a week caring for someone
• have been in Great Britain for at least two of the last three years and the person you care must get one of the qualifying disability benefits which include: Attendance Allowance; Disability Living Allowance (middle or highest care rate); Personal Independence Payment (daily living component)
You may not get Carer’s Allowance if you’re in full-time education, studying for 21 hours or more a week or if you earn more than £102 a week (after tax).

If you can’t be paid Carer’s Allowance due to the ‘overlapping benefit rule’, you may get: the carer premiums for Jobseeker’s Allowance or Income Support; extra Pension Credit or the carer element in Universal Credit.
*Subject to change

Universal Credit (UC) is a new benefit that is gradually replacing six existing benefits (income support, housing benefit, job seekers allowance, employment and support allowance, working tax credit and child tax credit) with a simpler, single monthly payment. Your eligibility to claim UC currently depends on where you live and your personal circumstances.

Employment and Support Allowance (ESA) offers support if you’re unable to work due to an illness or disability. The financial support you get depends on your circumstances and type of ESA you qualify for. You need to fill out the ‘limited capability for work questionnaire’ during your application for ESA and you may have to go to a Work Capability Assessment. This is to see if your illness or disability affects your ability to work, and can include a medical assessment.

Carers Credit is a National Insurance credit that helps build your entitlement to basic State Pension and additional State Pension, ensuring there are no gaps in your National Insurance record. You must be: aged 16 or over; under State Pension age; and looking after one or more people for at least 20 hours a week.

Council Tax Discounts Carers Discount If you are a carer living with the person you care for, you can claim a carers discount. It is only available to carers who care for an adult child, elderly parent or a friend (so not your spouse, partner or child under 18 years old.

Disabled Person’s Reduction -This is not a discount. You can get a reduction of one band on your council tax (e.g. if you are on Band B you will get a reduction to Band A). It is available if:
• a disabled person needs to use a wheelchair indoors
• there is a second bathroom/kitchen needed by the disabled person
 • there is a room (other than a bathroom, toilet or kitchen needed and predominantly used by the disabled person.
 
Bedroom Tax - From 1 April 2013 working age tenants who receive housing benefit, and have more bedrooms than required, will face a reduction in their Housing Benefit. The Scottish Government is mitigating this through increased Discretionary Housing Payments (DHPs). If the bedroom tax is affecting you, you can apply for DHPs with a form available at your local housing association or local authority Housing Benefit office, or the carers’ centre can help you.

Concessions and discounts - Many visitor attractions and venues allow carers a reduction or to go free, if they are accompanying the person they care for. A number of hotels, holiday and travel companies offer discounts to carers. Check before you book tickets or attend a venue.
The Cinema Exhibitors’ Association Card (CEA Card) entitles the holder to one free ticket for a person accompanying them to the cinema. See www.ceacard.co.uk for more information.
In Highland, The Plus One Scheme allows a person with high support needs to apply for a card which will give them greater access to a range of events and education, culture and sports venues.

Useful contacts

Making a claim for PIP • Contact DWP on 0800 917 2222 (8am - 6pm, Mon - Fri) • Carers can make this call but they need to be with the person making the claim
Scottish Welfare Fund has replaced the Social Fund. It pays out two types of grant: a crisis grant and a community care grant; to people in crisis and to people who need help to live independently in the community. To apply contact 01463 723560
Short Breaks Fund - Carers living or caring for someone in Highland, who are looking for a short break, can apply to Connecting Carers’ Time 2 Be Fund for funding and assistance.

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk

Power of Attorney (PoA) is a written document giving someone else authority to take actions or make decisions on your behalf. PoA details the names of the people, known as attorneys, who you want to help you and lists the individual powers that you want them to have. The PoA will also state when your attorneys can begin acting.

Who can make a PoA?
Anyone over the age of 16 who is capable can make a PoA.  There are restrictions if you have been made bankrupt.

What does it do?
The PoA provides legal authority for the attorney to make decisions for you. The PoA could be used in the future if you become incapable.

What does ‘incapable’ mean?
Your capacity could be impaired gradually or suddenly as a result of an accident or illness. A registered and licensed medical doctor will be able to say whether you are incapable or not.

Who can I appoint as my attorney?
You can appoint anyone you want, over the age of 16. This could be a family member or friend, a solicitor or accountant, or a combination. It’s usually a good idea to have more than one attorney or maybe what is called a substitute attorney to step in if your attorney can no longer do things for you. You can appoint someone to deal with your financial matters and someone different to deal with your personal welfare. Although, it’s your choice who you can appoint, you should note that someone who is currently declared as bankrupt cannot be appointed to deal with your financial and property affairs.

What would happen if I did not have a PoA?
Your family or friends may have to go to court to get the authority to act on your behalf.

Would my partner or family be able to help without a PoA?
No, no one has the automatic right to take actions on your behalf without legal authority.

Is a PoA just for older people?
No, accidents or illness can happen to anyone.

Is a PoA not for people with lots of money?
No, it is not just about looking after money/ property it can also let you plan who should decide personal welfare issues for you.

What kind of things can I put in a PoA?
You can include things to do with making decisions about: your money and/or property only; or your health or personal welfare; or all of your financial affairs and personal welfare.

How much does it cost?
A professional may charge you to draw up a PoA and prices vary. The PoA should include a certificate signed by a practising solicitor or by a registered and licensed medical doctor. The certificate is needed to confirm that you are capable of understanding the PoA. You might be charged a fee for this service. There is also charge a registration fee at the Office of the Public Guardian.

What happens to my PoA?
The PoA must be registered with The Office of the Public Guardian before it can be used, even if you are still capable of doing things for yourself.

What does the Office of the Public Guardian do with my PoA?
Once the PoA is registered, your documentation and an authentic copy of the PoA along with a certificate will be returned to the sender. They also send you a copy of the registered PoA for your records.

Can my attorney use my PoA before I become incapable?
Yes, they can help you with your finances if you want them to do so but they cannot make decisions about your welfare until you are no longer able to make those decisions for yourself.

Can I cancel the PoA once it is registered?
You can cancel your PoA or any of the powers granted in it once it has been registered. Information is available from the Office of The Public Guardian website explaining how to do this.

Where can I get further help or information?
Your local Citizens Advice Bureau or solicitor may be able to help. There is lots of useful information on The Office of the Public Guardian website (www.publicguardian-scotland.gov.uk) or you can phone or email them if you prefer Telephone: 01324 678300 Email: opg@scotcourts.gov.uk

What is a guardianship order?
This is a court appointment which authorises a person to act and make decisions on behalf of an adult with incapacity. Anyone with an interest can make an application for a guardianship order. When we refer to an adult, this is someone who is aged over 16 who is not able to look after their own affairs.
Guardianship is likely to be more suitable when decisions need to be taken on an ongoing basis. To give you an idea of the types of circumstances that might be suitable for a guardianship order, please refer to the case studies on the public guardian website.   Before applying for a guardianship order, you should seek legal advice to make sure the appointment will benefit the adult and is appropriate under the circumstances.

After taking legal advice, if the application is considered to be both appropriate and beneficial to the adult, the application will include a list of the powers you need to allow you to look after the adult’s affairs. Powers can be requested to deal with the adult’s property and/or financial affairs and/or to make decisions about their personal welfare.  For children who are about to reach the age of 16, you can apply for a guardianship order up to three months before their 16th birthday. This means that the guardianship order will take effect on the date of their birthday.

For more information on Power of Attorney or Guardianship contact the Office of the Public Guardian (Scotland).  The telephone number is: 01324 678300, email: opg@scotcourts.gov.uk ot visit their website at www.publicguardian-scotland.gov.uk.

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk

Respite means a carer and the person they care are supported to have a valuable break from the normal routine and demands of their caring situation. These short breaks are an essential part of the overall support that carers need.

Types of respite
Breaks in specialist/dedicated respite accommodation - These breaks are based in accommodation which is used only for respite/short breaks. Depending on the care group catered for, facilities may be able to offer additional care to cater for specific health conditions.

Breaks in care homes - Some care homes may have a small number of places set aside specifically for respite breaks. The home will provide separate accommodation with a carefully planned programme of activities for short-term guests to suit individual needs and interests.

Breaks in the home of another individual or family - These involve overnight breaks provided by paid carers in their own home. Families or individuals offering this support are carefully recruited and registered - normally by the local authority or through voluntary sector organisations.

Home-based respite - provided at home through a care attendant or sitting service. This includes individual support provided in the home of the cared for person for periods of a few hours or overnight. The purpose may be to provide support while the carer is away, or to support the carer in other ways, e.g. by enabling the carer to have an undisturbed night’s sleep.

Supported access to clubs, interest or activity groups - These opportunities might focus on a particular activity (e.g. lunch clubs, leisure activities) and may be based in a community building. These tend to take place over a few hours weekly.

Holiday breaks - These include opportunities for the carer and cared for person to have a short break or for them to go away separately. These breaks can be supported in different ways - through organisations specialising in breaks for people with particular needs, perhaps with some additional equipment or care agency support.

Befriending schemes - where volunteers provide short breaks. Befriending normally involves a paid worker or volunteer accompanying the cared for person to social and leisure activities, for example going to the cinema. Befriending can help people participate in mainstream services and maintain their social networks.

Day care – This is typically based in a community building and provided by a local authority or voluntary organisation. The degree of flexibility varies; most are characterised by fixed opening hours on particular days; some offer a drop in service whereby people can attend for part of the day only.

 Hospital/Hospice based respite - This type of break is for people who need medical supervision because they have complex or intense health care needs. Some facilities are designed in such a way to create a more homely environment with guest bedrooms, lounges and activity programmes.

What is Time 2 Be?

Time 2 Be is a grant award aimed at ensuring carers have the opportunity to access a short break.
Carers tell us that getting some respite or a break from caring, can make all the difference, giving them a chance to have some time to themselves.

We know not everyone can take a conventional break, and we know that the traditional respite break is not always the best option for the carer or the cared-for.

Time 2 Be is about having the chance to plan out a break or a way of getting yourself some timeout from your caring role. It allows you to create a break that works for your particular needs and circumstances.

It may be a few hours to pursue a hobby or activity, catch up with friends or relax doing something you enjoy. It might be having time apart, or having quality time together away from the daily routine. It might be a running machine that you can use in your own home if getting out is too difficult. It might be as simple as a meal out.

We understand small things can make big differences.

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk
 

Self Directed Support (SDS) puts the principles of independent living into practice. It is about flexibility, choice and control and having a decent quality of life. It is ultimately about promoting confidence and wellbeing for those with an assessed need.

It is also about designing a service that best meets the needs of the individual rather than fitting people to existing care provision. For example, if you are a man in his 50s with early on-set dementia you may not be keen on traditional dementia day care services and may prefer to employ a support worker who can take you out and do the things that interest you, such as fishing, walking or photography.

How does Self-Directed Support work?

If you have been assessed as needing community care services your social worker can organise services for you - things like meals on wheels, a support worker, attendance at a day care centre, personal care and so on.

This arrangement might suit you but there are other options and your social worker or care manager has a duty to explain these options to you.

What options are available with SDS?

When someone has been assessed and allocated a budget by social services they will be given 4 options:

Option 1: Direct Payment

Instead of the social work department arranging your services and paying for them, they can give you the money that would have been spent on these services. You can then use this money to pay for the support you need, at a time and place that suits you.

You can use your direct payment to:

• buy support from any service provider such as a private care agency or a voluntary organisation
• employ someone as your personal assistant
• buy services from your local authority if they sell their services.
 
You can also use your direct payment to buy equipment to help with mobility or other needs. Although you can decide how and when you want to spend the money, the services or support you buy must be aimed at meeting your assessed needs.

Option 2: Individual Service Fund

You choose what support you would like and the local authority (or an agency) holds your budget and makes the arrangements on your behalf.

Option 3: Direct Service

The local authority selects the support and arranges it.

Option 4: A Combination

You can also decide to have a mix of services - some provided directly by social work and some which you arrange and pay for yourself.

For more information on the above, the Scottish Government have produced national guides for people who use care and support services, carers and health and social care professionals. The service user guide is a practical guide written for people who intend to organise and manage their own support. The carers guide is for carers of people intending to organise and manage their own support arrangements. You can download it here.

You can also download an easy read version of the Guide to Self Directed Support.

You can also download information on SDS & Children with disabilities here.

If you would like more information on any of our services or just a chat Call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk 

 

Sleep disturbance is a common complaint in older people. It can be helpful to try and identify the trigger for disturbed sleep. Look out for one or more of the following:

Changes to the environment - staff changes, altering furniture/decor, changing rooms/usual environment, altering of routine etc. may adversely affect the sleep routine of the person.

Climate - check whether the environment and bedding provide appropriate warmth and comfort.

Noise and light - a person may not sleep as deeply and may have disrupted sleep due to excessive noise/stimulation both internal and external to the building.

Sleep apnoea, periodic limb movement disorder, or restless leg syndrome may be contributing factors in disturbed sleep.

Are they hungry? Be aware of the nutritional needs.

Pain - may be caused through acute or chronic illnesses. Pain may be caused through trauma that has not been identified due to the person's inability to communicate. Is there a history of falls?

Medication - consider whether insomnia is due to medication e.g. may be causing restless legs or cramps. The person may wake up as diuretics result in need to urinate.

Impaction and/or dehydration - constipation and/or dehydration can seriously impact on the behaviour of older people and their ability to sleep.

Cognitive impairment - Although not everyone with dementia, for example, will suffer from sleep disturbance, a significant number will experience disruption to the ‘normal’ day/night sleep cycle.

Mental illness - does the person have a previous history of psychiatric illness? Insomnia or early morning wakening may be symptoms of illness such as depression, anxiety or psychosis.

Recent loss - grief/bereavement, loss of independence, may all add to a person’s anxiety.

Past life events - sleep disturbance may be related to a memory of a significant life event being triggered e.g. an item on the TV, or significant anniversary may trigger the memory and emotions of a traumatic event such as bereavement.

Promoting sleep

• Avoid over-stimulation prior to bed-time e.g. caffeine intake

• Participate in light physical activity during the day.

• Ensure comfortable positioning and adequate pain relief.

• Ensure the bedroom is quiet, reassuring and relaxing.

• Close your eyes and identify the sounds (creaking doors, buzzers) that can all add up to an overstimulated environment.

• How ‘busy’ is the environment? e.g. bright colours, too much clutter.

• Provide adequate lighting to reduce confusion & disorientation.

• Ensure the way to the toilet is well lit and easy to access.

Managing disrupted sleep

• Check for signs of infection, e.g. check temperature.

• Identify what woke them and remedy the cause e.g. is the bed comfortable?

• The amount of sleep needed normally decreasing with age. Light activity through the day will help stimulate healthy sleep.

• If emotionally upset (crying, anxious, fearful). Communicate with them in an uncomplicated way to validate their feelings and gently reassure.

• Check how much sleep the person has actually had. Attempting to persuade the person to remain in bed if they have already had enough sleep may trigger resistance, frustration and even a catastrophic reaction.

• Allow the person to sit or wander quietly in the home or other safe area. Offer them a warm drink.
  
  If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk
  
   

When you care for someone you may come across a lot of professionals from different places. Although it can be quite daunting at first, it helps to have an understanding of the role each professional plays and how they can support you and the person you care for.

Advocacy caseworker - is someone who supports you to speak up and express your views and opinions. This could include contacting agencies by phone or letter, support at meetings and explaining information. Highland Carers Advocacy provide advocacy to carers.

Care homes - All residential and nursing homes are now referred to as care homes and details of local establishments can be provided by Connecting Carers.

Carer liaison workers - Connecting Carers have Carer Liaison Workers in localities across Highland to make connections with carers and visit them to discuss the support they need. We use a Carers Support Plan, which focuses on carers setting their own priorities. Carer Liaison Workers can also provide information, signposting and funding.

Community psychiatric nurse - When someone in the family has a mental health condition (e.g. depression or schizophrenia) or dementia, CPNs can offer support to the individual with the condition, and their family. CPNs can often form part of someone’s discharge plan following a hospital stay and can visit people in their own home.

Continence nurse/advisors -They provide information and advice about managing bowel and bladder problems. In the first instance, you should speak to your practice nurse at the health centre for initial advice.

Community nurse -They can visit people in their own home and offer help and advice on the practical and medical aspects of caring, such as physical care, medication, dressings.

Dementia link worker - They are allocated to people who have had a diagnosis of dementia, they offer support and signposting for the first year after diagnosis.  The benefit is that you will then be linked in with all the relevant services and information you need going forward.

General Practitioner - are well placed to identify carers and alert them to sources of help and advice.

Health visitors - are based within the community and visit mums and babies in their own homes, up to the age of five.

Homecare workers (sometimes referred to as carers) can come into your home for a few hours each week to help with tasks such as cooking, feeding, bathing, shopping, dressing and collecting pensions or prescriptions. Homecare can be provided by the NHS or through voluntary sector and independent providers.

Mental Health Officer (MHO) - are Social Workers with special experience and training in the area of mental health conditions and mental health law. They carry out duties under the Mental Health Care and Treatment (Scotland) Act 2003. MHOs may be involved in assessments concerning a person’s need to be admitted to hospital for treatment, or to be the subject of a guardianship order. They may also be involved in offering support and advice to individuals and families in matters of mental health and mental impairment and can provide details of resources in the local community.

Named Person - is nominated by a person experiencing a mental health condition. Named Person is also the name given to the professional who has responsibility for children as they grow.
 
Occupational Therapist (OT) -work with the Health and Social Care teams and aim to enable individuals with long term and/or complex needs to live a full and independent life within the limits of their physical and social circumstances. They can provide advice and support relating to illness or disability, advice on housing or major adaptions, provision of small pieces of equipment and minor adaptations, referral to other services that are required and rehabilitation in activities of daily living such as washing, dressing, meal preparation, etc.

Physiotherapists - will work with people to help them regain lost movement, improve mobility, and maintain safe independence in such activities as using the stairs.

Practice nurses - will provide care in the GP’s surgery or health centre with matters such as injections and dressings. They also provide chronic disease clinics.

Pre-School teaching service staff - offer home teaching for preschool children with special needs.

Service provider - is an organisation that provides a service to people with disabilities (sometimes referred to as service users).

Social workers - can advise on all sorts of personal and practical issues. They can arrange services such as respite care, sitter services, or a day centre place for the person you care for. Social Workers can be contacted directly or you can call: NHS Highland, for adult services on 01463 704000; or The Highland Council, for children’s services on 01463 702000.

Speech and language therapist - work with adults and children, offering information and advice on communication, speech, etc. and/or eating, drinking and swallowing difficulties.

Support worker—assists people with disabilities or mental ill health to get out and about while maintaining their independence. They can assist with shopping, going for a walk or a coffee, or getting to an appointment, when a person is isolated or needs supervision to maximise their potential.

Office of the Public Guardian (OPG) - is responsible for administering and regulating the Adults with Incapacity (Scotland) Act 2000 which deals with Powers of Attorney and Guardianship.

Voluntary sector/third sector - This is the term used to refer to the wide range of services provided by voluntary or charitable organisations.

Some of the health and social care services available within the community are provided by the voluntary/third sector e.g.:

Information and advice	Support groups
Sitter and respite services	Day care
Lunch clubs	Advocacy
Training for carers	Specialist condition-specific support Some of these services are free, others are not.

Changing the person you deal with or making a complaint - Sometimes it is possible to request an alternative professional if you are not satisfied with the support you’re receiving. If you want to make a formal complaint about the service you can call Connecting Carers for more information on the number below.

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk


 

Planning for the future is particularly important if a member of your family has a disability, physical or mental health problem, addiction or long term condition. You may want to make provision for them in your will and they may need support to manage any money that you leave them. You also need to consider the impact of making a will or trust. Any money that you leave to the person you care for may affect their welfare benefit entitlement and any financial contributions that they make to pay for their care.
 
This guide outlines some of the issues that you should consider when making a will or trust, however everyone’s situation is different. It is important to get expert legal advice and to have a discussion with other family members who may be affected.
 

Trusts - What are they?

A trust is a way of looking after assets (money, investments, land or buildings) for people. It is a legal arrangement where one or more ‘trustees’ are made legally responsible for managing the trust. A trust can be set up in your lifetime or in your will and is one of the best ways to make financial provision for a person whose main income is state benefits. There are several types of UK family trusts, and the one generally recommended is called a Discretionary Trust. The money is handed over to trustees who have discretion about how to use the income of the trust, and sometimes the capital.

Who can be a trustee?

Trustees should be people you trust who are happy to undertake the role. Trustees can be professionals, such as solicitors or banks, family members or friends, or a combination of the two.

How are welfare benefits affected?

Payments of income or capital from a discretionary trust may have an effect on means-tested benefits. If someone on means tested benefits receives a regular income of more than £20 a week from a trust, any amounts over £20 will be taken off the benefits. With the many changes taking place in the benefits system it is important that trustees regularly check that these rules have remained unchanged.

Wills

It is important to write a will if you have a family member with reduced capacity or some other type of disability. You will need to consider what provision you want to make for the person you care for, in addition to other people you may wish to provide for.
If you do not make a will the law requires that your estate is dealt with in a particular way - which may be contrary to your wishes. You may decide not to include the person you care for in your will and rely on other beneficiaries to support them but this can also be problematic. You can avoid these pitfalls by setting up a Discretionary Trust in your will.

Your home

There are a number of options available if you wish to leave your home to the person you care for. A person’s home is not taken into account when calculating their capital for welfare benefits. You may wish to leave the home to the person directly, or ask trustees to sell it and buy somewhere smaller or more suitable.
If you have concerns about their ability to manage the burden of owning a property, the house can be put in the names of the trustees who can allow the person you care for to live there. Alternatively you may specify in your will that the person you care for can live in the property for life, after which it is given to someone else.

Before writing your will:

• List what you own including assets and liabilities and their value in money.

• Think about who you would like to benefit from your will and what you would like to give them.

• Who you would like to be the executors of your will?

What is an executor?

An executor is the person you officially appoint to make sure that the wishes in your will are carried out. If your child or children are under 18, think about whether you would like to appoint a guardian for them. Think about whether you need to set up a trust for the person you care for.

Next steps

The Law Society of Scotland can help in finding a solicitor. They can also advise on how fees are set, solicitors’ standards and how to make a complaint. Call 0131 226 7411 or visit: www.lawscot.org.uk

If you would like more information on any of our services or just a chat call our Carer Support Line on 01463 723560 or email us on carers@connectingcarers.org.uk